I won’t lie – this has been tough to swallow. We are VERY thankful we caught the clots before, God forbid, they got to his brain, heart or lung – but this 100% absolutely, positively, sucks and took the wind right out of our sails. Tom feels like he got cheated out of two of his “good” days, we weren’t wanting an extended stay at the hospital, and it’s frustrating to feel like we are doing everything the doctors tell us to do and yet we still hit roadblocks. He’s in a lot of pain, but taking it like a champ and continuing to make me so proud.
Adding insult to injury, after I ran home to pack us bags, grab our laptops, etc. I parked and loaded myself up with our cargo - two laptop bags, two overnight bags, my blanket, a pillow and one extra bag of hospital stuff. I get to the entrance of his building, and it’s closed because it was after hours and I had to literally walk all the way around the hospital grounds to the emergency entrance and then trek from there all the way back to his room. We are lucky, we have amazing people in our lives, we both have jobs we love, we have each other, etc. - but after the day we’ve had, we simply reserve the right to hate cancer today.
We meet with our great team of doctors in the morning…more to come.