Well, unfortunately Tom got more into the Halloween spirits than I had hoped. After blood work today, it was determined he needs a blood transfusion tomorrow due to his red/white counts, so we will be spending our Friday at the hospital for his transfusion. We should be in and out of the hospital tomorrow (thank goodness we don’t have another sleepover), and in theory it should be a relatively simple process so fingers crossed all goes well. The great thing about a transfusion is that he should be feeling much better afterwards since the new blood will boost his red/white blood cell counts way up. Hopefully it’s a small bump in the road and this will be the only time we have to do this throughout his treatment.
He’s not looking forward to this, as you can imagine, but we were talking tonight and what’s most challenging for us right now is the constant unknown. It’s incredibly hard to not be able to trust any moment in time. For example, the morning of the blood clots he was feeling great, with the most energy he had in weeks and was excited for his last two “good” days. Fast forward 6 hours and he is wincing in pain in the ER. This morning we woke up thinking he just has to get his blood checked, and then has the weekend to rest, and now we have a blood transfusion tomorrow. Certainly, this happens in life no matter what, but the constant waiting for test results, checking progress, etc. can be draining and make it hard to not cautiously doubt good days since his health can change so fast. So tomorrow is a whole other adventure...more to come...
He’s not looking forward to this, as you can imagine, but we were talking tonight and what’s most challenging for us right now is the constant unknown. It’s incredibly hard to not be able to trust any moment in time. For example, the morning of the blood clots he was feeling great, with the most energy he had in weeks and was excited for his last two “good” days. Fast forward 6 hours and he is wincing in pain in the ER. This morning we woke up thinking he just has to get his blood checked, and then has the weekend to rest, and now we have a blood transfusion tomorrow. Certainly, this happens in life no matter what, but the constant waiting for test results, checking progress, etc. can be draining and make it hard to not cautiously doubt good days since his health can change so fast. So tomorrow is a whole other adventure...more to come...